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Meet Theo

Theo was born with a lymphatic malformation. Here's what his mom wanted to share about him:

"Theo is the sweetest little six month old in the world! He brings so much joy to our family, and we are blessed to call him our son! Theo was born with a mixed microcystic and macrocystic lymphatic malformation. Lymphatic malformations are rare vascular anomalies that usually occur in the head or neck. There is no cure for lymphatic malformations, but there are treatments that can help manage the condition. We have had quite the journey with our little miracle baby. At my 20 week ultrasound, abnormalities were detected with Theo’s brain, spine, skull, neck, and kidneys. We were told that his body was not compatible with life outside the womb. After many months of misdiagnoses, consultations, and tests; Theo surprised us all! He was born perfectly healthy, except for the mass on the left side of his face. Theo spent two weeks in the NICU and underwent major surgery during that time to remove about 50% of his LM. He has had two more surgeries since leaving the NICU to remove more of the malformation from his throat and to receive sclerotherapy. He also takes an immunosuppressant drug that helps manage his LM. Because his malformation does not obstruct his airway or esophagus, Theo does not need a tracheostomy or a feeding tube. My husband and I consider it a great privilege and responsibility to raise Theo. We pray that he always knows how much he is loved and wanted. It’s our hope to raise children who are kind, inclusive, and confident in the knowledge that they are fearfully and wonderfully made"

Connect with Theo on Instagram @mother_of_violet

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